your agony acid in my wounded heart
your pain changed us all
my pain body changed me
dementia weighed us down
agony clouded my mind
all of it needless
much of it needleless
my heart so full
your heart voiceless
as your messenger I took up the sword
even as your pain song rang through the halls
losing the battle
you won your freedom
still I fight, weapon in hand
health a victory yet to hold
~~~~~~~~~~~~
Some health care practitioners do not understand modern pain management. My father, whose brain tumour caused him to lose his language, was unable to name his pain. Not a cost issue, we were paying for most of his medications, staff hesitated to manage his pain. You can read pain symptoms in the body language and the spirit of those we love. Caregivers, professionals, need to listen to us.
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